Research reports

Convention on the Rights of Persons with Disabilities: Shining a light on Social Transformation

This report was commissioned by the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability. It investigates the early rights movement of people with disability, which “exposed the power relations inherent to the medical model of disability. The report acknowledges that the disability rights movement in Australia has driven important policy and legislative reform for people with disability. However, ‘it has not led to the social transformation required’ by the UN’s Convention on the Rights of Persons with Disabilities (UNCRPD).

Building choice, control and confidence

This submission is in response to the National Disability Insurance Scheme (NDIS) discussion paper on Support Coordination.

The quality of NDS plans, including the provision of Support Coordination funding, largely depends on people’s capacity to learn about and understand the system and to self-advocate. People experiencing multiple and intersecting forms of disadvantage and isolation face greater challenges at every stage of the NDIS journey, from finding out how it works to accessing the Scheme, developing a plan and connecting to services.

Overview of responses to the first Education and learning Issues paper

Responses to the issues paper about education and learning for people with disability have been received from individuals including people with disability, family members of people with disability, advocates, organisations and government. This overview is a summary of what people are saying. The use of restraints and seclusion in schools, experiences of bullying, and what neglect … Continued

Government response to the NDIS Act review

The Australian Government welcomes the 2019 review of the National Disability Insurance Scheme Act 2013 (the NDIS Act) report completed by Mr David Tune AO PSM. The Report contains 29 recommendations to improve the experience of participants with the National Disability Insurance Scheme (NDIS) and support the introduction of the Participant Service Guarantee.

“Left out and locked down” The experiences of people with disability and their families during COVID19

More than 700 people with disability and their families filled out the survey that asked about your experiences during the first wave of the Coronavirus pandemic. What impact did the pandemic have on your lives? How did you cope and what you thought of the changes made to the NDIS during this time?

The problems raised were the usual issues – confusing, changing and inconsistent information, lengthy delays, lack of flexibility, poor treatment at the hands of Local Area Coordinators or NDIA staff. These issues are bad enough at the best of times. But in the middle of a global pandemic they stood in the way of people with disability getting what they needed to stay safe and well.

Models of integrated care, health and housing

This report finds that integrated models for care, health and housing that are embedded in the community are the most effective at empowering clients and carers to take a lead in meeting their own needs and preferences. Incorporating literature reviews on integrated care models and consultation with key experts and providers of integrated care in Australia, this research provides an overview and analysis of integrated models of care for older people, as they relate to health care, social care, and housing or accommodation in Australia.

Second Progress Report

The Second Progress Report summarises the work carried out by the Royal Commission during the period 1 January 2020 and 30 June 2020.

Disability inclusion in company responses to COVID-19: Results of a survey among National Business and Disability Networks and their members

In May 2020, the ILO Global Business and Disability Network conducted two surveys – one for National Business and Disability Networks (NBDN) and one for those networks’ company members – to identify good practices and gaps in responding to the COVID-19 crisis in a disability-inclusive way. In total, 159 companies from 22 countries (representing four regions) participated in the company survey, and 19 national networks participated in the NBDN survey.

More than isolated: the experience of children and young people with disability and their families during the COVID-19 pandemic

The main message of this report is that urgent action is needed to attend to the many inequities that people with disability and their families and carers face on a daily basis. Without movement on these issues, any future widespread emergencies will again produce substantial destabilisation for these households, with similarly detrimental impacts. This report sets out the key findings of the survey, devised by Children and Young People with Disability Australia (CYDA), that captures the impact of COVID-19 on children and young people and their families and identifies unmet needs for resources and information as well as identifying areas requiring responses and future research priorities.

Disability support services: services provided under the National Disability Agreement 2018–19

In 2018–19, about 230,000 people used disability support services funded under the National Disability Agreement (NDA). Of these, 68% used the Australian Government’s open employment services. During the year, about 29,200 NDA service users transitioned to the National Disability Insurance Scheme, many of whom (65%) had an intellectual or learning primary disability.

Experiences Of People With Disability During COVID-19: Survey Results

Australians with disability represent some of the most excluded of all Australians in relation to the impacts of coronavirus. At the same time, many people with disability are particularly at risk from COVID-19, because of barriers that exist to inclusion, and the need for ongoing support. This report sets out the findings from a survey that asked 200 people with disability about their experiences over the last two months.

COVID-19 Insights: Towards just futures

This research provides insight into the impacts of COVID-19 on people with disability and offers some directions for recovery post-COVID The COVID-19 pandemic poses immediate risks for people with disability and their families and carers who experience higher vulnerability to COVID-19 due to pre-existing health conditions and reliance on support workers and disruption to essential supports and services particularly for those who struggle online. Some of the key actions include embedding strong governance and co-design by people with disability across all public policy and investing in community-based solutions which maximise existing resources and build inclusion.

Australian Disability Intermediaries Sector Report

This inaugural flagship report for the Intermediaries Sector exposes challenges within the operating and policy environment and features the results from the inaugural Intermediary Sector Survey which 461 intermediary service providers responded to. The administrative burden of NDIS systems and processes frustrate providers, with 61% of respondents strongly disagreeing or disagreeing that systems and process in the NDIS are working well, however, despite this, the sector is responding and meeting Participant demand.