SWAN Australia is the peak organisation and not for profit charity that provides information and support to families caring for a child with an undiagnosed or rare genetic condition. We aim to increase awareness and understanding of the impact and prevalence of undiagnosed genetic conditions within the wider community.
SWAN provide information and emotional support to families to assist them with establishing enduring mutually supportive relationships. We want to limit the isolation and the negative social, emotional and financial impacts experienced by families whose child has an undiagnosed or rare condition. By doing so we offer parent information seminars, peer support and a chance for parents to network with like-minded parents in social settings. We advocate for improved disability supports and services, free and equitable genetic and genomic testing and more funding into research to ensure more children obtain a genetic diagnosis.
- Type of Advocacy:
- Referral & Information Service, Systemic Advocacy
- Area of operation:
- National
- Phone:
- 0404 280 441
- Email:
- [email protected]
- Website:
- https://swanaus.org.au