Disability and Ageing: Lifelong Planning for a Better Future - Inquiry Report
This report was produced by the Senate Community Affairs References Committee, Parliament of Australia, 6 July 2011
This report examines the planning options and services available now and in the future to assist people with a disability, and their carers, plan for the long-term. In particular, it seeks to assist carers to find an adequate answer to the question: 'What happens when I / we can no longer care?'
Evidence taken by the committee suggests that the challenges facing the disability sector are substantial and that the existing system is not operating effectively. People with disabilities, carers, service providers and governments all agreed that there are many inadequacies in the choice, funding and support options available for people with a disability.
Beyond this, witnesses have also suggested that the deficiencies in the disability service sector have produced a crisis-driven culture which fosters dependency and which limits innovation. It has produced circumstances where families have become accustomed to receiving low levels of support and where it has become commonplace for family members to care for a person with a disability until they are unable to do so. This suggests that while reform is clearly needed within the disability service sector, cultural change is also required, both within the bureaucracy and service sector, in order to establish planning cultures and behaviours that sustainably support people into the future.
Given that Australia is anticipating significant population ageing, which will be accompanied by a commensurate reduction in the availability of informal care and support, the committee is deeply concerned by evidence suggesting that little sustainable planning is taking place. Many carers are so consumed by their day-to-day caring role that they have not even begun to start thinking about planning. Others find the planning challenge considerable and need support to manage what is a complex and multifaceted task.
In the report the committee focuses on whole-of-life planning, rather than simply service planning. It documents why it is critical that whole-of-life planning take place before proceeding to consider some of the major practical barriers to planning, including: access to information, accommodation support, availability of respite, appropriateness of assessment tools, and the difficulty of navigating the disability / aged care interface.